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Health Center - To Samantha Monkemeier, a walk in the woods is an amazing gift. Samantha has myasthenia gravis; a condition that causes her muscles to become very weak.
"The first thing that happened with me was I lost my speech," she said. "Then I couldn't swallow. My legs would just give out."
Dr. Brian Crum says it's not clear why this happens, but in some patients the condition may develop in part because of a small gland called the thymus.
"Myasthenia gravis is an autoimmune disease of the muscle, and it's caused by antibodies in the blood attacking the muscle and destroying the connection between the nerve and muscle," Crum said.
Medications such as steroids can reverse and control symptoms, as they did for Samantha, but another option is to remove the thymus gland.
During the traditional operation, doctors access the thymus gland by splitting the breast bone, but Dr. Stephen Cassivi uses a minimally invasive approach. First he makes a two to three inch incision in the neck. Then he places a special retractor that lifts the breast bone, allowing access to the thymus, which is underneath the breastbone. With specialized tools and a video scope, he then removes the entire thymus gland through the small incision.
"When you remove the thymus gland, it's not an immediate effect. It takes time for the body to wash out the effects that the thymus gland was having," Cassivi said.
Samantha had the surgery and is in the process of weaning off her medications. Her hope is that she can live symptom-free without needing medication.
"I have my strength back," she said.
Dr. Cassivi says there is no cure for myasthenia gravis, and surgery doesn't work for every case. That's because sometimes there are other factors causing symptoms. But most patients do get better after surgery.
Samantha says it was worth it. She's already off some of her medications.
After months of not knowing what was happening to her, Samantha says she entered her symptoms in mayoclinic.com's symptom checker. Then she contacted the Clinic for help.
For more information, visit
www.mayoclinic.org/medical-edge.
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